Thoracic Insufficiency Syndrome Patient Stories
1 - 10 of 10
Thoracic Insufficiency and Jeune Syndrome: Bubba’s Story
When Bubba was born with serious health issues, his family turned to CHOP for life-saving treatment from Jeune syndrome and thoracic insufficiency syndrome.
Sophia’s Story: MAGEC Growing Rod Implantation to Treat Neuromuscular Scoliosis
A CHOP occupational therapist's keen observation led to Sophia's neuromuscular scoliosis diagnosis, and supportive treatment to enhance her quality of life.
VEPTR Surgery for Spinal Muscular Atrophy: Raymond’s Story
Surgery in a child with spinal muscular atrophy (SMA) has eliminated life-threatening respiratory infections by straightening the spine and separating the ribs.
VEPTR Surgery for Jeune Syndrome: Madden's Story
Born with no hope for survival, a specialized team at CHOP helped Madden survive and thrive longer than anyone thought possible.
VEPTR Implants to Treat Jarcho-Levin Syndrome: Isla’s Story
After being told their daughter might not live past age 3, Isla’s parents were determined to look for a glimmer of hope, and they found it at CHOP.
Thoracic Insufficiency Syndrome and Spina Bifida: Landon’s Story
Landon's life has been transformed after his VEPTR surgery. His lung function has improved; he has enough energy to explore his surroundings,
Jeune Syndrome and VEPTR Surgery: Isla’s Story
James and Rachel traveled 3,000 miles to seek medical treatment for their daughter's TIS. CHOP is one of only a few hospitals in the nation that offer VEPTR surgery.
Thoracic Insufficiency Syndrome: Arwa's Story
Mubarak and Khairiah Alqahtani traveled from Saudi Arabia to seek lifesaving care at Children's Hospital of Philadelphia for their 18-year-old daughter, Arwa, who suffered from a rare disease.
Thoracic Insufficiency Syndrome and Congenital Scoliosis: Keegan's Story
Born with severe chest and spine deformities, Keegan's future looked dim until his parents found Robert M. Campbell, MD, and the innovative VEPTR device he created.
Thoracic Insufficiency Syndrome and Early-Onset Scoliosis: Salma's Story
Diagnosed with severe scoliosis and thoracic insufficiency syndrome, Salma traveled from the Middle East to Children's Hospital for life-saving VEPTR treatment.