Epilepsy in Children Patient Stories

CHOP’s NJTACC helps families find practitioners with an understanding of how to provide effective care for teens with special needs.

Adam’s hyperinsulinism/hyperammonemia wasn’t well controlled until he came from Chicago to CHOP. Now he’s participating in research to help find a better treatment for HA.

AJ’s life was relatively uncomplicated until age 14, when he began to experience unpredictable seizures and received a life-changing diagnosis of epilepsy.

 State-of-the-art brain surgery at CHOP reduced Emily’s seizures from 90 per day to zero — it's been life changing for her and her family.

With support from CHOP’s Dietary Treatment Program, Kayla is following a modified ketogenic diet and living her busy teenage life seizure-free.

This holiday season is extra special to Evan's mom: her 7-year-old survived a life-threatening medical emergency and is now home with his family.

Ava has been seizure-free for nearly a year thanks to successful hemispherotomy brain surgery and coordinated care at Children’s Hospital of Philadelphia.

Before starting on the ketogenic diet, Tikvah suffered from intractable absence seizures. But after just two months on the diet, her condition dramatically improved.

Martin travels from California to Philadelphia for special dietary treatment for his seizures, which medicines were unable to control.