Congenital Diaphragmatic Hernia (CDH) Patient Stories
1 - 10 of 20
Maxwell’s Story: Postnatal Repair and Care for Congenital Diaphragmatic Hernia
Chris and Jolin traveled from their home in Pensacola, Florida to Children’s Hospital of Philadelphia to give their son, Max, access to world-class CDH care.
Fetoscopic Endoluminal Tracheal Occlusion Offers Hope for Prenatally Diagnosed Cases of Severe Congenital Diaphragmatic Hernia
CDH can be a devastating diagnosis for an expecting parent to receive. But for a select group of babies with the most severe form of CDH, treatment before birth may help.
Overcoming Feeding Issues from Congenital Diaphragmatic Hernia: Maggie’s Story
Born with a hole in her diaphragm (congenital diaphragmatic hernia), feeding difficulties were one of the biggest hurdles little Maggie has had to face in her CDH journey.
Lily’s Story: Congenital Diaphragmatic Hernia Repair
After receiving a prenatal diagnosis of CDH, Laura and Nick turned to the expertise of CHOP’s fetal team.
Oliver’s Story: Prenatal and Postnatal Care of CDH and Giant Omphalocele
After an unexpected prenatal diagnosis, Olly’s parents found comfort with the experienced team at CHOP’s Center for Fetal Diagnosis and Treatment.
Jaxon’s Story: Prenatal Diagnosis, Pregnancy Management and Postnatal Care of Congenital Diaphragmatic Hernia
When Jaxon’s family learned he had congenital diaphragmatic hernia, they traveled from West Virginia to seek care from the CDH experts in Philadelphia.
Congenital Diaphragmatic Hernia: Gage’s Story
Born with CDH, Gage made a full recovery after surgery at CHOP. To help others, his family is participating in research about long-term outcomes for CDH.
Madison’s Story: Congenital Diaphragmatic Hernia Surgery
Less than 24 hours after Madison was born, she had CDH repair surgery for a congenital diaphragmatic hernia. Now she’s in college with plans to become a doctor.
Congenital Diaphragmatic Hernia (CDH): Carter’s Story
Even though home is near Washington, DC, Carter, 6, travels to Philadelphia for ongoing care for the congenital diaphragmatic hernia he was born with.
Congenital Diaphragmatic Hernia and Pulmonary Hypertension: Chad’s Story
Chad, 11, is smiling again after multiple surgeries and ongoing treatment for CDH and pulmonary hypertension at Children’s Hospital of Philadelphia.