Newborn/Infant Intensive Care Unit Patient Stories

One family shares their experience for parents who learn their child has a severe diagnosis before birth

As a baby, Josie received a liver transplant. This began a 10-year journey that included bonding with her donor’s family and a generous gift to help future transplant patients.

Wanting desperately to save their child, Courtney and Khaled made the difficult decision to have their son transferred to Children’s Hospital of Philadelphia in the midst of a global pandemic. It was a lifesaving move.

Noah was born very premature and developed a serious lung condition. He found the lifesaving care he needed at Children’s Hospital of Philadelphia.

Diagnosed before birth with the most severe form of spina bifida, Kaitlyn underwent surgery while she was still in the womb. Now 5, she is happy and healthy.

Born at 29 weeks and weighing 1 lb 8 ounce, Joseph's mom credits his breakthrough recovery to the remarkable care he received at CHOP.

Diagnosed with a lymphatic leak before he was born, Austin is thriving today thanks to innovative treatment at Children's Hospital of Philadelphia.

A multidisciplinary team at Children’s Hospital of Philadelphia helped Josephine conquer complex medical needs from severe infant chronic lung disease.