Division of Endocrinology and Diabetes Patient Stories
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Pseudotumor Cerebri Syndrome: Lily’s Story
With pseudotumor cerebri syndrome, the symptoms are real even though the tumor is not. Lily relied on her CHOP doctors and her own perseverance to combat the condition.
Insulinoma: Leilani’s story
When doctors in Florida struggled to diagnose Leilani’s rare illness, her parents pushed to bring her to Children’s Hospital of Philadelphia, where she was cured.
Hyperinsulinism and Turner Syndrome: Aliza’s Story
It was only after Aliza’s parents brought her to CHOP that she received expert care for her two diagnoses: Turner syndrome and hyperinsulinism.
Endocrine Late Effects After Cancer Treatment: Raine’s Story
Treatment for childhood leukemia has had several long-term effects on Raine’s health, but this successful college graduate is pursuing her dream.
Type 1 Diabetes: Morgan’s Story of Successful Advocacy
Strong parent advocacy ensured Morgan’s diabetes was under control at school. Now Morgan is advocating for others.
Hyperinsulinism and Post-pancreatectomy Diabetes: Jenny’s Story
A CHOP research study seeks to even out the ups and downs of post-pancreatectomy diabetes. Jenny, who has hyperinsulinism, can’t wait for the results.
Turner Syndrome: Carlin’s Story
Carlin, 12, has Turner syndrome. She has been receiving comprehensive care and a network for support and training at Children’s Hospital of Philadelphia.
Congenital Adrenal Hyperplasia: Evelyn’s Story
Evelyn’s parents had never heard of CAH, the rare adrenal condition their daughter had, until her diagnosis. But with CHOP’s help, Evelyn’s health is back on track.
Type 1 Diabetes: Dane’s Story
Dane was diagnosed with Type 1 diabetes at 9. He took it on and dealt with it, never letting it get in the way of his determination to succeed.
Kallmann Syndrome: Jill’s Story
When traditional tests were inconclusive, Jill turned to the Roberts Individualized Medical Genetics Center for a diagnosis of Kallmann syndrome.